So little time

I have so many days I need to tell you about! Every time I wanted to write about the day something came up and I wasn't able to - So I thought "I'll just write tomorrow about both days!" Well, now I'm finally writing about 5 days! Woah. Let's go back 5 days to Thursday May 9th.

5/9/13 and 5/10/13 were very sad days for Abigail. She was having a really rough time with the whole sleep thing again - very little if any sleep was had those days for her. I actually contemplated putting her back on her day dose of clonazepam - she wasn't throwing huge screaming fits all day long like the last time we did gave her her daily dose - but she was not at all able to find comfort  or sleep - she was just miserable all day. EXCEPT she did SO GOOD at the Physical Therapist's office on Friday the 10th.

The P.T. visit was so good on so many accounts, I learned some really good things! Abi does have a low neck tone so her head is a little floppy still. She can hold it up and does have decent control of it when she does - but she just doesn't choose to hold it up often. Her arms are really tight, she likes to keep them tucked in close to her body. One of the stretches we need to do with her is pull her arms straight up over her head and she fights it pretty good. She's really strong! The P.T. says this tightness in the arms is probably due to the lack of control of her head. It seems as if she tries to compensate her lack of head control with her arms by holding them really tightly, and when we lift them up over her head she may feel a little out of control I guess. But her lower body is in excellent shape says the P.T. She has excellent control of her lower body. She (P.T.) also agrees with me that Abi has a vision 'deficiency', if you will, not that it is her expertise, but it fits with the not focusing on anything and even the not using her head as much as she could. If she doesn't have any motivation to look up and focus on something, why would she look up? Or keep her head up? At the very end of the visit we made notice that when Abi does focus on something it's typically farther away from her than right up close, so the P.T. said she might be farsighted which is (and I quote) "Abnormal for a newborn - normally they are nearsighted" -- There it is! If it's abnormal for a normal newborn that means it is inevitable for Abi! haha

Saturday 5/11/12 - Abigail took 2 naps today! We were out of the house all day for Jaren's baseball tournament (he is a baseball coach) and she nursed the whole first game then couldn't find sleep until we went on a short drive down the street and she fell asleep! She slept for quite a bit! -about 2.5-3 hrs then we went back to his second game where I fed her again but this time she was able to fuss herself to sleep in her carseat! She slept through most of the game as well as most of the car ride home! Between naps she was rather miserable for most of her awake time but we were still able to play a little bit.

Sunday 5/12/13 - Overall today was a relatively sad day for Abigail but she took 3 NAPS TODAY! It was awesome. She fell asleep during second hour of church and would have slept through the rest of church but during sacrament meeting (during the actual sacrament) she started her breathing thing that she does where she breathes loudly and raspy-like..it really wasn't that loud but her dad was all worried about it and making other people upset so he had me try to reposition her. That didn't work but I didn't want to keep messing with her so she would stay asleep. Also, her awake fussy noises are much louder than her sleep breathing noises anyway. Then the guy sitting in front of us looked back and that was enough for Jaren he made me take her out of her car seat and give her to him so he could take her out the room - which woke her up. Ugh. I was sooo frustrated because she doesn't sleep often! And it takes so much for her to actually fall asleep that once she is asleep I want to do anything in my power to keep her there. It really wasn't that big of a deal, and I PROMISE no body cared, but he thought it was, he's very sensitive to any noise she makes..I would have been more mad if she didn't go back to sleep at all that day, but she did so that made up for it and I got over it. She fell asleep all by herself in her swing. It wasn't a non-interrupted sleep as I think she is still dealing with belly aches and what not but it was still sleep. THEN, a third nap came and I was shocked!  The family went for a walk in my new bike trailer/stroller that I got for mother's day (THAT I LOVE SO MUCH!) and she slept through the whole thing! I like to think that 3 naps was Abigail's Mother's Day gift to me. She's so good to me.

Monday 5/13/13 - Abi got 2.5 naps today. She slept a few hours for Sheena today which is awesome and then her and I got a really good long nap from like 1:30/2 to 4:30! It was so nice. It's getting warmer outside though so we both woke up sweating a little bit. Haha Also today I went to Zumba again, I love when I get to do Zumba - the first part of the class Abigail was just sitting in her car seat switching between just chilling there and fussing a little bit, so I let her be, hoping she'd fall asleep. Halfway through she got a little bit more upset so I picked her up and finished the class bouncing around with a baby in my arms - Abigail LOVED it. She even smiled a little bit! SO fun, I am next time going to try to put her in the baby bjorn that I have so I can do the arm movements too. I have tried to put her in it for stuff around the house but she hasn't seemed to like it at all, but maybe if she's bouncing around she'd like it more? She's at that age where she hates being put down right now - but I hate putting her down, so it works out. :P She had a few moments of inconsolable misery but overall I would put today down as a good day.

I can't wait to get my bike trailer hooked up to be able to go on bike rides with her. She loves to be outside and moving but I hate running, and walking isn't enough exercise for the amount of food I enjoy eating..hahah so a bike will be wonderful! I also hope I can get her to enjoy the Baby Bjorn again so I can go on some hikes this summer with her.


Today (5/14/13) we are going over to St. George to see a speech therapist for a swallow evaluation that her pediatrician recommended after hearing about her breathing and drooling issues. And then we go see her pediatrician again for a well baby 4 month check up and a referral to see some specialists - Vision, G.I, and Ear, Nose, Throat - So I have NO idea what to expect today, specifically with the swallow eval - but I hope it's good stuff! This upcoming Thursday (5/16/13) Abi and I are headed up to Salt Lake for a seizure Q and A forum with 5 seizure experts. I am very excited about that. I assume it is going to be set up like a press conference where the panel of 5 experts are sitting at the front and we just raise our hands and ask questions that we may have about our child/seizures/treatments/diagnosis/whatever we think of. I have really high hopes for this night as there is still so much to know! I don't have a whole lot of questions myself, but I'm hoping the other moms/dads have some q's that I wouldn't have necessarily thought about myself. I am also excited to meet other parents whose children have seizures to discuss similarities and differences and maybe things I can expect in the future? I don't know, I'm just VERY excited about it. I sure wish my sister could come with me because she has the best questions - but my mother-in-law and sister-in-law have agreed to come with me for moral support so I'm excited to have them there too.

That's it for now. As tigger would say TTFN! Ta-Ta For Now!

Have a Great Day All!

This is AbiNormal